Being able to hold the baby certainly makes this whole experience a lot easier to deal with, but we're not out of the woods yet. We had a small scare from the cardiac team this week, who found what may be a clot in a vein near the baby's heart from the surgery. They're treating him with blood thinners, monitoring his progress and hopefully he'll be fine. The baby will be on blood thinners for 1-2 weeks, and hopefully it'll be closer to a week.
He's also been seen daily by a feeding specialist, Dolores. With each session, he's taking more and more milk by bottle, which is great, but Dolores says that due to his little chin, it's difficult for him to take sufficient milk on his own, and the feeding tube is still necessary.
OMF surgeons (Oral Maxillofacial) confirmed this with their evaluation yesterday. They're convinced that the baby will need surgery to enlarge his jaw and have ordered a CT scan to obtain measurements. The surgery is not going to take place for another month, though, and the baby will B"H be able to come home for a bit in the meantime! Hopefully, the clot issue will be resolved soon, and we can bring him home for a few weeks (with the feeding tube).
So, at least we have a bit of a timetable now, which is comforting, though I hate the thought of putting our baby through more surgery, even though I know it's for the best. It's been really tough, but we try to take the situation day by day.
Thank you all very much for the your supportive messages, emails, and voicemails. It's difficult to return calls, but we do appreciate them all very much.
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